Debbie Knight

A reminder (to me) why I blog

In observation on November 9, 2012 at 10:00 am

Wow.  As a blogger, I often wonder if what I write is reaching anyone.

I’m sure this is something with which many bloggers struggle.

Today I got a comment on a blog post from July. “A reminder (to me) why I do research” was about a heart-rending email my boss received from a patient.

The comment, which I will place here anonymously, was equally heart-rending.

Here was another woman with a clearly debilitating medical condition, searching for answers to her medical mystery. And she stumbled onto my blog, presumably through an Internet search.

One line from her message gave my heart an extra twist: “I have no health insurance but the ER.” (Wow, that’s something I take for granted in my own life.)

Another gave me hope because she has people who really care for her:  “I have family willing to take me anywhere or do anything to help me.”

She wrote:
 “I am convinced I have Susac’s Syndrome. I have cotton wool spots, terrible chronic headaches, personality disturbances, hearing loss, confusion, memory loss and vision loss. My MRI is normal. … I have no health insurance but the ER.

“I read what you just wrote here and I was wondering, can you tell me what kind of specialist I should be sending my pleas for help? I have family willing to take me anywhere or do anything to help me. I just don’t know where to start.”

In an email sent to her privately, I will give her a name of a clinician with whom we collaborate. I hope he can give her sound medical advice and an idea where to start unraveling her mysterious illness.

Good luck, SZ! I hope your journey of discovery will lead to your restored health!

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